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 a wish for ava's Profile |
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A Wish for Ava |
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| Age: | 38 years old |
| Sex: | Female |
| Location: | Silverlake, CALIFORNIA |
| Country: |  United States |
| Height: | 0' 0" |
| Zodiac: |  Capricorn (Dec 22- Jan 19) |
| Last Login: | Sep 29, 2008 (12 days back) |
About Me |
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| rest in peace, our brave daughter was too tired to fight any longer.
ava jaymes cipriani passed away on april 17th, 2007.ava cipriani is a 3 year old girl who was diagnosed with pediatric neuroblastoma cancer, stage 4.we brought ava into cedars-sinai medical center on easter sunday, and she was originally diagnosed as having a blood infection. with probably a hundred x-rays, tests, surgeries, bone scans, cat scans, mbig scans, bone dyes, etc. done, it was found that she had neuroblastoma. as you can imagine we were in shock.this is a rare type of cancer, that strikes only 1 out of 400,000 children. cedars-sinai (one of the largest hospitals in the world!) says that they see only 4-5 children a year that have this type of cancer. it is non-genetic, and no links to the enviroment are blamed. doctors do not have an answer as to where it comes from.it is usually found when it is at stage 4 (the last stage) and at that point, aggressive chemotherapy and radiation are required. she was in a lot of pain during the first month, in fact she was on morphine a lot of the time to help comfort her.the tumors are in her bone marrow in her lower hip and leg area. there were no signs leading up to her diagnosis.neuroblastoma is called "the great hider". statistics show that after her treatment is done, there is a 60-75% chance it will keep coming back.her treatment is expected to last a year and a half, and will include a stem cell transplant. during that time, she will be in the hospital for about 2 months in absolute sterile conditions.because not many children are struck with this illness, major drug companies are not willing to pour millions of dollars into research and cures for it.
the medical expenses are very overwhelming for us as you can imagine.neuroblastoma does not carry the same notoriety as breast or colon cancer. funding and research are very important.ava is doing well during her treatment, she is not in any pain. she has kept her appetite when she is not receiving chemotherapy.
she will have a stem cell transplant in 2 weeks.there are a few fundraisers called "A Wish for Ava" happening
these are in form of private monetary donations, auctions, clothing donations, toy donations, etc...the latest is an idea for a concert. if you are interested in helping ava, please send an email.thank youMyspace Backgrounds |
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My Background and Lifestyle |
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| MaritalStatus: | Married |
| SexualOrientation: | Straight |
| Hometown: | silverlake |
| Children: | Proud parent |
My Pictures |
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My Blog |
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rest in peace beautiful fighter |
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| ava jaymes cipriani passed away suddenly on april 17th. there was no warning.we go on day by day, only being able to remain sane by knowing that she no longer suffers.one day there will be a cur... Posted by a wish for ava on Sat, 09 Jun 2007 11:51:00 PST |
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URGENT!!! RE: WISHING WELL SHOW |
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| hi everyone,please note that the deadline for all art for the show has been pushed back to January 15th. Please let me know if everything is going fine or if you cannot be in the show. Please ON... Posted by a wish for ava on Mon, 27 Nov 2006 11:36:00 PST |
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new website! |
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| awishforava.comstill in the works, but off to a start...... Posted by a wish for ava on Sat, 07 Oct 2006 03:25:00 PST |
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strength |
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| whenever i take ava to a park or indoor playground, i realize just how strong she is. even with her condition, she can outrun, outclimb and outjump most other "healthy" kids. it gives me hope for he... Posted by a wish for ava on Fri, 06 Oct 2006 07:09:00 PST |
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auction postponed |
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| hello everyone,i hope you are all well. we are getting ready to admit ava in for her stem cell transplant at ucla medical center. she will be in the hospital for 2 months straight. we hope... Posted by a wish for ava on Sat, 30 Sep 2006 12:03:00 PST |
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ava's charity auction, round 2 |
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| this is a partial list of donations for the next auction as of today: please email me if you would like to contribute!3" dunny customs wolfchildjoules-blue flower dunnyedzepln-dunnyscunndas-blockhead ... Posted by a wish for ava on Thu, 29 Jun 2006 11:26:00 PST |
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a wish for ava auction, round 1 |
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| hi everyone,the first round of charity auctions are finally over, and the last of the items were shipped out today, Whew! it was a ton of work, but brought in some much needed funds for ava. a b... Posted by a wish for ava on Wed, 28 Jun 2006 04:33:00 PST |
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a wish for ava... |
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| hi everyone,i am getting swamped with emails and phone calls since we found out about Ava's cancer.many of you have asked how you can help...there is a fundraiser mainly spearheaded by friends over o... Posted by a wish for ava on Mon, 12 Jun 2006 06:00:00 PST |
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My Friends |
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monkeyhouse toys, doris, jason jacenko, julie b., amy sol, johnette napolitano, Kathie Olivas, Adam, Celena, soopajdelux, Thee Basket Boo-tique, Helen, GAMA-GO, Blinky1, voidx, Joe Sorren, Kickflip off your booty, bitch!, Reactor-88, Nick The Ring, Lou, agatha, zdenek55, Coco, ImaNaturalisticMystic, laura, Tia Cares For Kids :LTD)(, Chaos, 5no3 is lokked up*R.I.P. Billy Krillz*, slouchy, MRS. G!, 8+, uub, Fight Kids Cancer, OliviaKate.com, MunchieMallow.com, Broken Heart Robot, Mover!, ♥♫♥Krista♥♫♥, JESTO-RAMA, ANNYSHAY, Keenan, kawsfanatic
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Tags |
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a wish for ava's profile has been tagged with the following keywords. Click a tag to search for profiles with the same tags. cedars sinai medical center, cedars sinai medical, stem cell transplant, sinai medical center, neuroblastoma cancer, aggressive chemotherapy, silverlake california, colon cancer, cancer stage, leg area, type of cancer, blood infection, sterile conditions, bone scans, rest in peace, rare type, x rays, stage 4, easter sunday, medical expenses |
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